#IStandWithKassiane

Sonnolenta:

I experienced the latter day of TPGA’s failure to moderate parents, while deleting, banning and silencing Autistic voices. I was especially aghast at the banning of Autistic Advocate Kassiane (Radical Neurodivergence Speaking). Until such a time comes that TPGA issues an apology to the many Autistic adults they silenced, as well as the Autistic community as a whole, I am removing TPGA from my blogroll, have unlikes their page on Facebook, and will no longer be sharing their material. They’ve shown me and countless others that they are not allies.

Originally posted on ischemgeek:

Okay, so, it’s with a heavy heart that I announce that no longer will I recommend the Thinking Person’s Guide to Autism book or community as if they’re on my mental list of good parent resources. They’ve been demoted to “less bad.”

Why?

Because of their continued, and worsening, treatment of autistic adults on their community facebook page, which came to a head last night and the night before. For a long while now, autistic people have been held to a higher and higher standard than non-autistic parents in the comment threads of TGPA. It had gotten to the point that some autistic users complained of a seeming “parent’s code” that appeared to prevent real criticism by parents of other users who were parents.

This phenomenon was apparently out in spades Sunday night (I was not there and so cannot speak to it myself) and was definitely apparent last night…

View original 644 more words

Please consider supporting Autistic people via organizations other than Autism Speaks : An open letter to Iron Chef America’s Michael Symon, Mario Batali and Masaharu Morimoto

Dear Iron Chefs Symon, Batali and Morimoto,

I would like to ask you to consider expanding your charity work in support of Autistic people to include organizations other than Autism Speaks. I’m writing this as an Autistic adult, and Mother of an Autistic twelve year old boy, who has big dreams of one day becoming a chef. My Son Connor is homeschooled, and upon completing his work each day, checks in to see how many episodes of Iron Chef America, Chopped, Cutthroat Kitchen, and other favorites have recorded. In short, he looks up to all of you. He’s been very inspired by all of you. He talks about one day meeting an Iron Chef, or being able to enjoy one of your dishes. Your words mean something to him. He cooks or bakes several times a week, dreams of one day going to culinary school, and wants a Kitchen Aid mixer for Christmas this year. My boy is serious, and I support him 100% in following his dreams, despite his challenges.

10532566_676523359097588_3059547228908879021_n

Yesterday, we were watching the Iron Chef Chopped Championship together, when Connor paused the recording, and called me over to listen. “Mom, Iron Chef Michael Symon is going to give $50,000 to Autism Speaks if he wins! Doesn’t he know about how many ways they are not a good place to give your money?” I replied, “I don’t know. I’ll do some research to find out more”. I did find out more, (Here, especially – the Cleveland Autism Speaks Chef’s Gala featuring Iron Chefs Michael Symon and Mario Batali, hosted by Wolfgang Puck and featuring 20 prominent Cleveland Chefs**) and that’s why I’m writing this letter and begging you to listen to me, an Autistic adult, as well as the voices of numerous other Autistic people and Autism Advocacy Organizations who have taken a powerful stance against Autism Speaks.

I understand that you may chose to donate to Autism Speaks for personal reasons, such as Chef Symon having a friend with two Autistic children. However, I would like you to consider that there are better organizations out there to support. I hope that in reading this letter, you’ll allow me to inform you about why that is. I am one of the Autistic people whom you claim to wish to support, so I feel that it’s important that you listen to what I have to say, as well as consider how my Son felt when I told him that three of his favorite Iron Chefs support an organization that has no Autistic representation, and puts the majority of their monies into research initiatives that involve both eugenics and drastic and controversial therapies. 

Through my research I discovered that your colleague, Chef Simon Majumdar has supported the National Autistic Society through his work. Majumdar also recently shared the following tweet:  · Sep 22 We have so, I think we should also have my first shout outs go and both great causes  AND, he retweeted the following tweet, in a show of support:  · Sep 22  Thank you for supporting Autistic people. and can use your support !!  Many of us in the Autism community took notice of this and thanked Majumdar and retweeted his supportive words. Unfortunately, my attempts to let Chefs Symon, Batali and Morimoto about myself and my Son’s disappointment in their support of Autism Speaks went mostly unheard. Chefs Morimoto and Symon ignored my tweet, and Chef Batali wrote the following, then ignored my polite replies:

Screen Shot 2014-09-22 at 11.31.17 AM

As celebrity chefs, you all have great influence and a far reach. Please consider using your star power, talent and influence to positive use by considering some of the many amazing alternatives to Autism Speaks.

I’d like to begin by sharing with you some key points from a letter published on January 6, 2014 by the Autism Self Advocacy Network. This letter contains some of the most compelling reasons that anyone who wants to support Autistic people shouldn’t choose to give Autism Speaks that support. The letter, entitled “2014 Joint Letter to the Sponsors of Autism Speaks” (found in full HERE) was jointly drafted by 26 established Autism Advocacy Organizations.

Autism Speaks has no Autistic representation within their organization:

Autism Speaks’ senior leadership fails to include a single autistic person. Unlike non-profits focused on intellectual disability, Down Syndrome, Cerebral Palsy and countless other disabilities, Autism Speaks systematically excludes autistic adults from its board of directorsleadership team and other positions of senior leadership. This exclusion has been the subject of numerous discussions with and eventually protests against Autism Speaks, yet the organization persists in its refusal to allow those it purports to serve into positions of meaningful authority within its ranks. The slogan of the disability rights movement has long been, “Nothing About Us, Without Us.” Almost nine years after its founding, Autism Speaks continues to refuse to abide by this basic tenet of the mainstream disability community.”(source)

Autism Speaks has a history of supporting dangerous fringe movements that threaten the lives and safety of both the autism community and the general public.

“The anti-vaccine sentiments of Autism Speaks’ founders have been well documented in the mainstream media. Several of Autism Speaks’ senior leaders have resigned or been fired after founders Bob and Suzanne Wright overruled Autism Speaks’ scientific leadership in order to advance the discredited idea that autism is the result of vaccinations. Furthermore, Autism Speaks has promoted the Judge Rotenberg Center, a Massachusetts facility underDepartment of Justice and FDA investigation for the use of painful electric shock against its students. The Judge Rotenberg Center’s methods have been deemed torture by the United Nations Special Rapporteur on Torture (p. 84) and are currently the subject of efforts by the Massachusetts state government and disability rights advocates to shut the facility down. Despite this, Autism Speaks has allowed the Judge Rotenberg Center to recruit new admissions from families seeking resources at their fundraising walks.”(source)

Autism Speaks’ fundraising efforts pull money away from local communities, returning very little funds for the critical investments in services and supports needed by autistic people and our families. 

Screen Shot 2014-09-24 at 8.08.15 PM

Only 3% of funds donated to Autism Speaks are reinvested in services and supports for autistic people and our families. Across the country, local communities have complained that at a time when state budget cutbacks are making investment in local disability services all the more critical, Autism Speaks fundraisers take money away from needed services in their community.  In addition, while the majority of Autism Speaks’ funding goes towards research dollars, few of those dollars have gone to the areas of most concern to autistic people and our families–services and supports, particularly for autistics reaching adulthood and aging out of the school system. According to the Department of Health and Human Services’ Inter-Agency Autism Coordinating Committee, only 1% of Autism Speaks’ research budget goes towards research on service quality and less than one-quarter of 1% goes towards research on the needs of autistic adults.” (source)

Autism Speaks’ advertising depends on offensive and outdated rhetoric of fear and pity, presenting the lives of autistic people as tragic burdens on our families and society.

“In its advertising, Autism Speaks has compared being autistic to being kidnappeddying of a natural disasterhaving a fatal disease, and countless other inappropriate analogies. In one of its most prominent fundraising videos,  an Autism Speaks executive stated that she had considered placing her child in the car and driving off the George Washington Bridge, going on to say that she did not do so only because she had a normal child as well. Autism Speaks advertisements have cited inaccurate statistics on elevated divorce rates for parents of autistic children and many other falsehoods designed to present the lives of autistic children and adults as little more than tragedies.” (source)

 

Sponsors of Autism Speaks are beginning to listen to the voices of Autistic adults, such as myself- by severing their sponsorships and arrangements with Autism Speaks. Most recently, both Build-a-Bear Workshop and Panera Bread dissolved their sponsorships. Why did they do it? Because they listened to Autistic voices and realized that what we were saying was valid. They respected the fact that when Autistic people are speaking in outrage about an organization supposedly positioned to help them- that something must be very wrong with that organization. They understand that the anti-vaccine stance found in many of Autism Speaks “treatments” is both dangerous and cavalier. Autism Speaks has been criticized for years due to it’s use of dehumanizing rhetoric about Autistic people, its pithy spending on direct services for Autistic people, its exorbitant executive salaries (Its rates of executive pay are the highest in the autism world: some salaries exceed $400,000 a year.),  and its refusal to include Autistic people in meaningful leadership positions within the organization. (source: Boycott Autism Speaks)

You might argue and tell me and others like me, “BUT, AUTISM SPEAKS DONATES 34% TO RESEARCH INITIATIVES!” Let me tell you something… research does nothing to provide immediate help and assistance to Autistic people in the present moment. Only 4% of the money Autism Speaks raises goes directly to Autistic families and supports! Autism Speaks can fund all of the research in the universe, but that doesn’t support real-life families in real-life situations, in need of real-life supports. Autism Speaks donates only one quarter of one percent of their monies to provide support to Autistic adults. What happens when Autistic children grow up and become adults? What services does Autism Speaks provide to transition them, support them and provide accommodations for them? A fraction of a minuscule percent of next to nothing, that’s what. And furthermore, Autism Speaks essentially believes that Autistic adults such as myself don’t exist. That after a certain chronological age is reached, we all go “poof” at midnight, or turn into pumpkins. We do exist, and we’re the experts on Autistic experience, NOT a group of grossly overpaid Autism Speaks executives pocketing $400,000 a year salary each out of the donations of the brainwashed masses.

Autistic adults are speaking out in droves against the actions of Autism Speaks. We want to be heard! We deserve representation by those who claim to want to support us. Here are some of the wise words of my adult Autistic friend Amy Sequenzia, a non-speaking autistic self-advocate, poet and writer, whose writing and poems are regularly featured on Autism Women’s Network and  Ollibean.

“If organizations like Autism Speaks were really thinking about us, they would stop spreading fear of autism and they would start talking to us, the only true experts on autism. They would then help us achieve the goal to cure what really needs to be cured: the false assumptions of what life as an autistic person is, what life with an autistic person is.” -Amy Sequenzia (source)

I tell you with earnest that should you choose to discontinue supporting Autism Speaks, you’ll be showing that you truly care about Autistic people of all ages, colors, voices and disabilities- not just those whom Autism Speaks deems appropriate. Autism has been primarily positioned as a “disease” affected white, upper/middle class boys. This is erroneous, as Autism can be found in people as varied as the Autism Spectrum itself. Autistic adults and women also represent a hugely forgotten demographic of Autistic people in dire need to supports and assistance.. As an Autistic mother of an Autistic child, you will certainly have my greatest respect, and you’ll also make one of your Autistic fans overjoyed.

 

Sincerely,

Cristiana Calderan and Connor

 

Please consider future charity work benefitting Autistic people to include organizations such as:

 

asan_widebanner

Autistic Self-Advocacy Network (ASAN) provides support, community, and public policy advocacy, by and for people on the autism spectrum.

 


 

542821_617607751589339_1208649550_n

Autism Women’s Network provides effective supports to Autistic women and girls of all ages through a sense of community, advocacy and resources.

 

 


20 prominent Cleveland area chefs who participated in the Cleveland Autism Speaks Chef’s Gala with Iron Chefs Michael Symon and Mario Batali:

- Tim Bando – Grove Hill (Chagrin Falls) 
– Jonathan Bennett – Moxie (Beachwood) and Red (Cleveland, Beachwood) 
– Derek Clayton – Michael Symon Restaurants (Cleveland)
– Britt-Marie Horrocks  Culey – Coquette Patisserie (Cleveland) 
– Brian Doyle – Sow Food & Beachland Ballroom (Cleveland) 
– Brandt Evans – Pura Vida (Cleveland) and Blue Canyon (Twinsburg) 
– Anna Harouvis – Anna in the Raw (Cleveland) 
– Chris Hodgson – Hodges, Cibreo, Driftwood Catering, Bin 216 (Cleveland) 
– Jeff Jarrett – AMP 150 (Cleveland) 
– Douglas Katz – Fire Food & Drink, Provenance (Cleveland) and Katz Club Diner (Cleveland Heights) 

-Tim Monsman – Giant Eagle Market District stores (various locations) 

- Matt Mytro – Flour (Moreland Hills) 
– Fabio Salerno – Lago and Gusto (Cleveland) 
– Jonathon Sawyer – Greenhouse Tavern, NoodleCat and Trentina (Cleveland) 
– John Selick – University Hospitals Ahuja Medical Center (Beachwood)
– Karen Small – Flying Fig (Cleveland) 
– Dion Tsevdos – Cheese Shop, Urban Herbs, & Classic Seafood at West Side Market (Cleveland)
– Jill Vedaa – Rockefellers (Cleveland Heights) 
– Rocco Whalen – Farenheit, Rosie & Rocco’s, Rocco’s Tacos (Cleveland) 
– Eric Williams – Momocho (Cleveland) and El Carcinero (Lakewood).  

 

The Wilderness is our Classroom : Chattooga River Trail/Ellicott Rock Wilderness

Our second year of homeschooling is in full swing, with this year’s Science class focusing entirely on Geology. What I love about this is that the hiking excursions we so often enjoy can now be expanded into even greater learning opportunities. Our hot and steamy weather is starting to wane, which means one thing in our family other than “everything pumpkin” – that’s right, HIKING SEASON IS BACK!

OLYMPUS DIGITAL CAMERA

We hiked this portion of the Chattooga River Trail in the summer, on a particularly cool day. I tripped on an outcropping of rock and injured my knee, which fortunately was not the chipped patella I thought I had, but rather, a much less serious case of “inflamed bursa”. I still can’t kneel down on that knee, but not having to have surgery? I’ll take it!

This particular area is one of our most recent and favorite areas in which to hike. It’s extremely secluded, untouched, and spectacular. It alarms me to admit that I lived in Upstate South Carolina for over two years before discovering the Chattooga River, which forms the border between SC and GA. A portion of it is classified as a “wild and scenic river”, which means that there is no development, dams, hydroelectricity, or any such tampering of it’s natural flow. “Few rivers live up to their reputation. The difficult, 19-mile Chattooga National Wild and Scenic River in South Carolina’s northwest corner does. Steeped in history and Hollywood, this gush of whitewater churns along the border of South Carolina and Georgia for 40 miles. Most river aficionados know it best as the backdrop for James Dickey’s classic novel, “Deliverance,” and the subsequent 1972 movie starring Burt Reynolds.” It also happens to be an awesome area to observe numerous geologic formations, and more types of rocks than I can currently wrap my head around.

The only people you’re likely to see on a hike here might be some trout fisherman at the Burrell’s Ford Road bridge, or some campers not far off that same road. I’ve actually never been camping in my life. It’s not something my family did. It’s something I wanted to do, even trying to sleep out in the backyard, or on the back porch when I was a little girl. But mysteriously, I always awoke tucked back into my bed the next morning… I really, really want to start camping, but I need to get camping equipment. And right now, I’m saving money full tilt for a downpayment on a house.

If you are a regular reader of my blog, you probably already know that maintaining a close proximity to nature and spending as much time as possible out in the forest is a big part of my overall therapeutic plan. I spent decades of my life forcing myself to live in populated urban areas, or loud and hectic suburban neighborhoods. From 2002-2012, I lived where my parents had retired- a place called “Hilton Head Island”, which I detested with every fiber of my being. Hilton Head is completely manicured, fabricated, false, fake, snobbish, you name it- I have a choice negative adjective to describe it. It was my special kind of Hell. Moving to Upstate South Carolina was a clean break, and being close to the mountains, lakes and streams has been a panacea for my soul, not to mention a return to those things that are most important in life.

We collected a lot of rock samples on the hike, that we’ll identify in later lessons this month. I can’t help but take photos of the many wildflowers that bloom here- these are probably the very last of the year!

OLYMPUS DIGITAL CAMERA

Euonymus americanus, commonly known as “Hearts-a-bustin'”, grows prolifically in Southern Appalachian forests. It’s a really beautiful sight at this time of year!

OLYMPUS DIGITAL CAMERA

Spoon Auger Falls, which I’ve been calling “Spoongauer” Falls for the longest time… a short hike off the main trail, but very steep and with a lot of switchbacks!

OLYMPUS DIGITAL CAMERA

Spoon Auger Falls

OLYMPUS DIGITAL CAMERA

Spoon Auger Falls

OLYMPUS DIGITAL CAMERA

I realize that the river probably looks tiny in these shots- I enjoy using a camera mode called “miniature”. This shot was taken on the trail when it is about 50 feet above the water level.


OLYMPUS DIGITAL CAMERA

Swimming in a calm section of the river, just off one of our favorite spots- a white, sparkly sand beach we named “Luna’s Beach”, after our dog Luna. This is a gorgeous place to take a break, eat lunch, and swim!

OLYMPUS DIGITAL CAMERA

Wading at Luna’s Beach. There’s a good 20-30 feet of beautiful white sand beach here. Furthermore, the entire beach is filled with shimmering particles of eroded Mica, which makes it completely magical!

OLYMPUS DIGITAL CAMERA

Distant shot of boy and dog at Luna’s Beach.

OLYMPUS DIGITAL CAMERA

Down river. The views are so much prettier than any camera could ever capture!


OLYMPUS DIGITAL CAMERA

This is Orange Jewelweed (Spotted Touch-Me-Not) – Impatiens capensis- I love the little curl at the base of the flower!

OLYMPUS DIGITAL CAMERA

Boy and dog maneuvered out onto this rock cropping, with me watching nervously. The river isn’t deep or fast here, but there’s lots of rocks. And I’m so scared of falling again, after our last trip here!

OLYMPUS DIGITAL CAMERA

Victory!

OLYMPUS DIGITAL CAMERA

 

Stella won’t let her human go anywhere alone. She’s always one step behind.

OLYMPUS DIGITAL CAMERA

The perfectly clear, crisp waters of the Chattooga.

OLYMPUS DIGITAL CAMERA

I believe this beautiful little purple flower might be Blue Lobelia, Lobelia siphilitica.

OLYMPUS DIGITAL CAMERA

Stella, enjoying the waterfall!

OLYMPUS DIGITAL CAMERA

Closeup of striated rock formations at the Spoon Auger Falls.

fotoSome rocks I picked up at Luna’s Beach. These are all embedded with sheets of Mica, which is a super shiny, soft mineral from which cosmetics are made! Seeing that I formulate cosmetics as my job, I always love finding these stones!

 

Killing you never crossed my mind.

DCP_1128

 

Dear Son,

I’m writing this to you because you’ve asked me questions about Issy Stapleton, an Autistic girl whose Mother tried to kill her. You’ve no doubt read about other parents of Autistic children who have killed their children. I’m sure it’s confusing when you read that people feel sorry for these parents, who felt murdering their child was an acceptable way to deal with their problems. I’m sure this makes you wonder if at some point in time I wanted to kill you.

My answer to this question is: NEVER.

From the very first moment I discovered I was pregnant with you, I wanted you. You were a little miracle, you see… because for the first two months of my pregnancy, I was told that my hormone levels weren’t rising, or that it was a false pregnancy, or that I should go home a lie down, and take it easy- because I surely would be miscarrying you. You outsmarted them all, little one. Finally, at an ultrasound appointment, you let them know you had no intention of going anywhere- with a tiny little heart beating.  I cannot put into words the joy that this brought me. I loved you more than anything I had ever loved before, and I had never met you. You were my sunshine from the moment I heard your heartbeat.

At this point, I started getting lectured about genetic testing. As a thirty year old mother, I was told my pregnancy was “high risk” and that the chances of you having a birth defect were higher. I was told that maybe my pregnancy wasn’t progressing normally because you potentially had one of these defects. While some they could ascertain visually from viewing the ultrasound, others required genetic testing. They would need to stick a big needle into my belly and withdraw amniotic fluid from within the cozy little bubble which you inhabited. There was risk with this testing, but they urged me to do it. So that I would know if you were “alright”. I refused the testing. I didn’t want to do anything to put your life at risk. I knew there was a chance you could be born with one of the many genetic defects listed in the pamphlet they gave me, but I didn’t care. I wanted you just as you were. I would love you no matter what.

As my pregnancy bore on, it became clear that it was going to be a difficult one. I had many false alarms, which then turned into real alarms. I went into premature labor, starting at twenty weeks, several times. You and I spent a lot of time at the hospital, late at night. If you had been born that early, you would most likely never have survived. I was given shots and medicines, and told I had to go on “bed rest”. I spent most of the next sixteen weeks laying down, only getting up when I absolutely had to.  It was hellish, but questioning my decision to have you never crossed my mind.

You were determined, and so was I. Through all of the pregnancy aches, pains, sleepless nights, weight gain, headaches, and confusion about the future- questioning my decision to have you never crossed my mind. When I was admitted to the hospital on May 11, 2002 (my 33rd week of pregnancy), in active labor, I knew you would soon be here. They tried everything to delay your arrival, but it didn’t work. I was told you weighed only three pounds and had a 40% chance of survival. I had social workers come into my room before you were born, to give me grief counseling. They even sent a priest. They wanted me to understand that you might not survive. You showed them.

You arrived at 11:37 AM on May 13, 2002. The day after Mother’s Day. It was a dark, rainy morning and you shouldn’t have arrived until the very end of June. Despite being so early, you unleashed a furious cry within your first few seconds, and I finally got to meet you. My first thought was that you looked like Yoda. I can’t lie, because you were a greenish color, covered in white stuff, with a wrinkly little face. To be honest, I only held you for a few seconds, because they whisked you away to the neonatologists that were waiting to assess you.  I fell into a deep sleep, aided by pain medication.

When I awoke, I didn’t know where I was, but I knew that I felt very empty. You were no longer in my belly, and the empty, sad feeling of you no longer moving, kicking and hiccuping stayed with me for weeks after you were born. I probably would not have felt this way if I could have had you with me, but I couldn’t. You were in the NICU for those weeks. I went to feed you several times a day, and I was only allowed to have you out of your isolette for ten minutes at a time. You had severe jaundice, torticollis, and no suckling reflex. I was not able to breast feed you, and bottle feeding you was often an insurmountable task. The nurses would give me the tiniest little bottle, filled with 5 ml of formula, with which to feed you. You were so tiny, and had several IV’s going into your feet, and a big one on your forehead. You still to this day have a squiggly little vein in your forehead from where that IV was. It would take forever to feed you even a tiny amount, and then you would spit it all back up.

When you came home from the NICU, I barely slept. I was a single Mother, so I didn’t have anyone to help me out. My parents lived several hours away. Your sleeping was erratic, you took over an hour to drink a tiny bottle, and then you’d sleep for fifteen minutes and wake again wailing, only to start the whole cycle. During the day, the slightest little noise awoke you and you’d cry insatiably. I was desperate for sleep, desperate for help, and desperate in general. I didn’t realize at the time, but I was suffering from post partum depression. There were days when I truly thought I was losing it. But you know what? The thought of killing you never crossed my mind. Being a parent is difficult, but that’s what we sign up for when we decide to become parents. I had no help or support and was caring for a newborn infant and running a business at the same time- it felt impossible and hopeless very often, but I loved you, and I was determined to make it through. No matter what. Killing my baby or myself because I was depressed and times were tough was not an option.

I’ve loved you since I first found out you existed, and I will always love you. No matter what. Though the world might call you many names, and Doctors over the years have written many scribbles in their ledgers, you are and always will be my Son. And I will always love you no matter what labels are given to you. No matter how difficult times got, I want you to know that I never thought that killing you was a solution to the difficulty I was dealing with. Murder is wrong, no matter what the circumstances. I don’t want you to ever be concerned that receiving an Autism diagnosis will change things, because it won’t. I will still love you. You and I don’t have much family, or assistance, or supports, but that’s okay. We’ve made it this far without it, and we will continue to thrive. I don’t want you to worry about those things. I don’t want you to worry that things will change. There’s one thing that has never changed for your entire life, and that is how much I love you.

101_0459 000_0086 101_7705 101_5406

 

 

 

Getting to know me…

OLYMPUS DIGITAL CAMERA

 

Yesterday marked my return to blogging after a summer’s hiatus. I was going to post this yesterday, after reading this post on the blog of my friend Alex. I loved reading her post and learning more about her. I honestly don’t know if anyone cares much to know more about me, but for me, this is a good exercise in getting back into writing mode. I know this list will be difficult for me to write.

The idea is to present 20 random facts about yourself, so that people might get to know you better. 

Here I go!

1. My favorite book is “The Mists of Avalon” by Marion Zimmer Bradley, and I’ve read it about 20 times. I just recently listened to it on audiobook. I love her fresh perspective on Arthurian legend.

2. I cry about ten times a day, sometimes more. I’m extremely sensitive to emotional stimuli. Sometimes a TV commercial makes me cry, sometimes a baby animal. Sometimes it’s something I’ve read. Sometimes I cry while watching Star Trek. I always cry while watching Doctor Who. Tears do not equate with depression.

3. I was born with severely clubbed feet and had to wear braces and casts. The cast on my right leg grew into my calf, and I almost lost my leg. I have a long scar up my right leg. My feet are straight now, but this part of me was a constant reminder when I took ballet class and my teacher would complain about my awful feet. One day, I told him this, and he never kvetched at me about my feet again. I am grateful to have been able to have this problem taken care of when I was a baby. If I was born 100 years ago, I would most certainly not have been able to walk.

4. I absolutely detest American football, and can’t figure out why this upsets people so much.

5. Despite being a very quiet, introverted person, I enjoy adventurous things. In the past year, I’ve gone whitewater rafting twice, and zip lining at the Arenal volcano in Costa Rica. I also love roller coasters!

6. I have one tattoo, which I got in 1993. It is black ink only, and is a band of roses and thorns from an Aubrey Beardsley illustration.

7. When I was briefly married, my husband volunteered to work on John Edward’s campaign. He refused to do the phone call portion of it, and made me do it. This was one of the most frightening things I’ve done in my life, to be honest. I had to make hundreds of phone calls to people I did not know, and ask them political things. I was horrible at it, as most Autistic people probably would be. I cried myself to sleep every night for the month I had to make those calls.

8. I had an opportunity to move to Italy for nine months out of each year, several years ago. I almost set it into motion, but I realized that being introverted, quiet, and Autistic didn’t lend itself well to Italian culture in general, when my Italian friends told me that most people found me to be “strange” and “depressed”, including them.

9. If I wasn’t a Mother, I would most definitely have applied for the Mars One mission.

10. My favorite food is pizza, which is rather sad, because I have tested positive for food sensitivities to both gluten and dairy- and eating pizza makes me feel terrible.

11. Although I’ve made a lot of progress in terms of self acceptance, overall, I still feel unliked and misunderstood by most. I’m not sure how to ever shake this.

12. I’m proudly Pagan, which means that I have eschewed my early life’s religious indoctrination in the Baptist church. I consider myself to be a spiritual person, but not religious. I am a solitary. I try to be as in tune with nature as I can be.

13. I’m a single woman and a single mother by choice, and by a promise I made to my Son. When my very abusive marriage was coming to a close in 2010, I found out that my husband had been abusing my Son. This left him with much to work through, and a general fear of the same thing happening again. I made my Son a promise back in 2010 that it would never happen again, and I will keep that promise. I’ve also learned that trying to be in a relationship was a top source of much of my life’s turbulence. I feel it is very sad that our society measures people’s worth by whether or not they are in a relationship. I’ve never been happier, while not being in one. I don’t miss it at all.

14. I wrote a book back in 2002 and it was published. Every 6 months I get a royalty check, and that check is always a nice surprise to receive. I was recently able to start paying myself a paycheck every two weeks, so I hope to save my royalty checks towards a downpayment on a little house! My book is “Holistic Aromatherapy for Animals” and you can find it an Amazon, B&N and most major book sellers.

15. My favorite music is, and always will be classical music. I play the violin, and not as well, the piano.

16. Every time I go outside at night and look up into the sky, I am struck with wonder and stand there, still as a statue for at least 5 minutes.

17. I have a birthmark on my stomach which exactly matches the star pattern of the Pleiades star cluster. I first noticed this when I was a little girl.

18. While I hate being uncomfortable, I wish I could dress every day like I lived at a Renaissance Fair. This would probably only last 15 minutes after putting on such a dress.

19. I plan to own a flock of Silkie chickens in the very near future.

20. I am very passionate about many things in the political arena, but I seldom discuss or share things like this on my Facebook page because when I do, I get the definite idea that I am pissing people off. And that makes me insanely uncomfortable.

21. This was very difficult list for me to write.

Back from hiatus… aka strange dreams on the morning of my 44th birthday

Today, I will be a year older at 10:46 AM. I will be happy to spend the next year with an even-numbered age. I like the number 4. This year, I can enjoy two of them. Unfortunately, no cake for me this year. My Doctor has me on a very restricted diet, and no sugar of any type is allowed for at least 6 more weeks. I dream of cake. And, as you’ll soon find out, cows.

I’m officially breaking my blogging hiatus today! The summer was incredibly busy, leaving me with no spoons with which to blog. I recently finished a major, major project- something which I’ve been trying to do for over ten years, actually- move my website to a new store platform. Well, I did it- and everyone seems to like it, and it’s working great so far. (LINK if you’re curious). We started our 2nd year of homeschooling on August 14th, and all is going very well so far.

At this point, I’d like to share with you my odd, but very wonderful dream from this morning:

First, you need to see this painting to understand the basis of the dream. It is called “Europa and the Bull”, by Coypel. It depicts the myth of Europa being taken by Zeus in the form of a bull. I’ve been very interested in Greek mythology lately, and my Son has been for several years.

M-Europa-Coypel

Second, let me introduce you to Maira. She’s a lovely cow who lives in the pasture along the side of the house we’re renting. There’s about 30 cows in there right now, of which that number includes 15 calves. I adore watching the cows. This week I achieved greatness when I finally convinced one of the cows to eat cracked corn out of my hand. It took six months, but I finally did it! The next day, three of them ate from my hand. And the day after that, at least 10-12 of them. It’s been a stellar week, basically.

1981896_604289242987667_1004619158_n

 

Now, my dream! Got an interpretation of this dream for me? Leave me a comment!

My mind fabricated it’s own version of the painting, “Europa and the Bull” by Coypel- in the cow pasture behind my house, though. In my dream, I went over to the fence with a bucket of corn, and all of the cows galloped up to get some. While I was feeding them, a group of people came out of the back entrance of my neighbor’s house. In my dream, I identified them as the farmer and his family (i.e. owners of the cows and the land). We exchanged pleasantries, and they said they heard that the cows loved me. The farmer’s son asked me which cow was my favorite. I pointed to Maira, who is the only cow in the field who has horns (some breeds of female cows have horns).

He suddenly had Maira saddled up with a blanket and a leather cinch and was leading her with a bridle. He told me to get up. So I did, and then he was leading Maira into the cow pasture, which suddenly had transformed into the visual equivalent of this painting- with beautiful blue water, flowers growing everywhere, cherubs, butterflies, etc… it was the most beautiful thing I’d ever seen. A lot of the visuals in my dream also looked a lot like some of the scenes in “What Dreams May Come”, which I recently re-watched after Robin William’s passing.

Once we set foot on the other side of the fence, we were both wearing flowing robes, and were all blowy, iridescent, and shimmering. Our hair was long and wavy, sparkling in the sunlight- which was the most soothing warm gold tone, like a perpetual sunset. We went all around the pasture (which was really no longer the pasture), and it was this amazing, spiritual experience.

But at one point, I remembered that my Son was standing back at the fence waiting for me, so I knew I had to go back. When I returned, he was sitting in the grass on the other side of the fence, kicking his feet in a pool of water. As I got off Maira and went through the fence, the entire pasture suddenly became a clear, still lake with moonlight reflecting on it, and I was back in my normal clothes, no longer supernaturally glowing. The lake was very deep, but crystal clear, and the cows were all at the bottom- alive and well.

And that, my friends- is my bizarre Greek-myth inspired birthday cow dream.

I will leave you with some of my favorite moo pictures. Every day I go out to visit the cows. It’s relaxing. I love seeing all of the new babies (two more were born the day before yesterday!). There’s two donkeys in the field too, to protect  them from coyotes.

10641114_694182520665005_5718412791704603105_n1016952_610282679054990_895245870_n 1604748_621221301294461_7410421386837696400_n 10261977_621224524627472_1083463097325860974_n 10325307_681888711894386_1361537660946695596_n 10382455_669934633089794_3412173773246792026_n 10429320_668241883259069_2598635272456249175_n

 

A brief hiatus…

1512278_650661998350391_5763760816955546095_n

 

I’m needing to take a break from blogging and activism for the rest of the summer. 

Certain priorities have to come first. Parenting, making a living, maintaining the house, expenses, preparing for the upcoming homeschool year. I wish I could handle all of these things AND regularly blog, but I can’t. I’ve been trying to, and it’s been taking it’s toll on me. Autism Activism is very emotional for me, and can exhaust my resources, leading to meltdowns. I need to learn to pace myself, and understand that I can’t participate in every single event that happens. It’s been draining my resources, which are limited. Even worse, is that I feel a great deal of guilt because I haven’t been able to regularly blog, or participate in flashblogs and activism. I’ve been trying to be kind to myself about this, because my situation is unique- everyone’s is. For some, activism and blogging is their main activity. I wish it could be mine, but that’s probably an alternate universe. I can’t compare myself to an activist who is married with a supportive spouse, or one who doesn’t have to work, or one who has children in public school with supports and accommodations. I don’t have any of that. Rather than beat up on myself every day for not being able to participate, I’ve decided to take a break, set some limits for myself, and return in September with a fresh and renewed sense of adventure.

Summer isn’t my favorite time of year. Living in South Carolina, the heat and humidity can become stifling in July and August, which results in more time spent indoors. I’ve always been more active in Autumn and Spring, and even hike all through the Winter. Even though my Son is homeschooled, we follow the regular school calendar in order to meet our 180 day education requirement. So he’s out for the Summer. A lot of parents who homeschool might find their schedule becomes easier, but for us- it is actually much more complicated and time consuming when he isn’t spending 4-5 hours a day working through his curriculum, online exercises, reading and projects. School provides daily structure and routine that he’s gotten used to, and it’s been rather chaotic for him without it. I can sense his anxiety! He has a lot of distinct interests and projects going on right now, and those have been ones that are time-consuming and require supervision, such as cooking, baking, and working with tools in the creating of his Viking shield.

So, that’s where my Summer has gone. I’m also working on implementing a brand new website design and platform for Aromaleigh Mineral Cosmetics (my small business that I started over 15 years ago, which thankfully supports us!), and my yearly huge project of getting all of my finances entered, categorized and prepared for the September and October deadlines of my income tax extension.

I LOVE TO WRITE, SO I WILL BE BACK WRITING REGULARLY, AS SOON AS I CAN!

In the meantime, please let me know if there’s anything specific that you’d like me to write about. I think that hearing some suggestions will get me inspired!